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Neurological Identities and the Movement of Neurodiversity

https://doi.org/10.22394/2074-0492-2020-2-125-156

EDN: UMDVKU

Abstract

The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Very few studies have been conducted to examine the significance of the neurosciences and the cerebralization of autistic culture for promoting these ideas. The article explores the role of the brain and the neurosciences in projects of identity formation as illustrated in the case of the emergence of the neurodiversity movement. The movement is driven by so called high functioning autistic individuals, who argue that autism is not a disease, but a form of human difference. The article examines the development of autistic individuals and autistic socialities as well as social and community networks. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows that the formation of identities is associated with the cerebralization of the condition. Facts about the brain are mobilized to depict autism positively. The move toward neurosciences has to be understood in a wider social context in which a brain-based vocabulary disseminates outside the lab and penetrates different domains of contemporary societies. This vocabulary is taken up by individuals and groups to speak about themselves and their relation with others as well as in their identity claims and fights for rights.

About the Author

Francisco Ortega
State University of Rio de Janeiro, Brazil; King’s College, London, UK
Brazil

Professor, Institute of Social Medicine, Rio de Janeiro State University; Director, Brazilian Center for Global Health; Visiting Professor, Department of Global Health and Social Medicine, King’s College London. 



References

1. Abi-Rached J.M. (2008a) The new brain sciences: Field or fields? Brain, Self and Society.

2. Paper No. 2, BIOS (Centre for the Study of Bioscience, Biomedicine, Biotechnology and

3. Society), London: School of Economics.

4. Abi-Rached J.M. (2008b) The implications of the new brain sciences. EMBO Reports,

5. : 1158–1162.

6. Antonetta S. (2005) A mind apart: Travels in a neurodiverse world, London: Penguin.

7. Ariel C.N., Naseef R.A. (еds) (2006) Voices from the spectrum: Parents, grandparents,

8. siblings, people with autism, and professionals share their wisdom, London; Philadelphia:

9. Jessica Kingsley.

10. Bagatell N. (2007) Orchestrating voices: Autism, identity and the power of discourse.

11. Disability & Society, 22: 413–426.

12. Baron-Cohen S. (2002) The extreme male brain theory of autism. TRENDS in Cognitive

13. Sciences, 6: 248–254.

14. Biever C. (2007) Let’s meet tomorrow in Second Life. New Scientist, 2610: 26–27.

15. Blume H. (1997a) Autism and the internet, or, It’s the wiring, stupid. (http://web.mit.edu/

16. comm-forum/legacy/papers/blume.html)

17. Blume H. (1997b) Autistics, freed from face-to-face encounters, are communicating

18. in cyberspace. New York Times, 30 June. (https://www.nytimes.com/1997/06/30/

19. business/autistics-freed-from-face-to-face-encounters-are-communicating-incyberspace.html)

20. Brownlow C.L. (2007) The construction of the autistic individual: Investigations in online

21. discussion groups. PhD thesis, University of Brighton.

22. Brownlow C., O’Dell L. (2006) Constructing an autistic identity: AS voices online.

23. Mental Retardation, 44: 315–321.

24. Bumiller K. (2008) Quirky citizens: Autism, gender, and reimagining disability. Signs:

25. Journal of Women in Culture & Society, 33: 967–991.

26. Chamak B. (2008) Autism and social movements: French parents’ associations and

27. international autistic individuals’ organizations. Sociology of Health & Illness, 30: 76–96.

28. Chamak B., Bonniaua B., Jaunay E., Cohen D. (2008) What can we learn about autism

29. from autistic persons? Psychotherapy and Psychosomatics, 77: 271–279.

30. Charlton J. (2000) Nothing about us without us: Disability oppression and empowerment,

31. Berkeley: University of California Press.

32. Cheu J. (2004) De-gene-erates, replicants and other aliens: (Re)defining disability in

33. futuristic film. M. Corker, T. Shakespeare (еds) Disability/postmodernity: Embodying

34. disability theory, London: Continuum: 198–212.

35. Churchland P. (1981) Eliminative materialism and the propositional attitudes.

36. Journal of Philosophy, 78 (2): 67–90.

37. Clarke J., van Amerom G. (2007) ‘Surplus suffering’: Differences between

38. organizational understandings of Asperger’s syndrome and those people who claim

39. the ‘disorder’. Disability & Society, 22: 761–776.

40. Clarke J., van Amerom G. (2008) Asperger’s Syndrome: Differences between parents’

41. understanding and those diagnosed. Social Work in Health Care, 46 (3): 85–106.

42. Corker M. (1999) New disability discourse, the principle of optimization and social

43. change. M. Corker, S. French (еds) Disability discourse, Buckingham: Open UP: 192–209.

44. Corker M., French S. (еds) (1999) Disability discourse, Buckingham, Philadelphia: Open

45. UP.

46. Corker M., Shakespeare T. (еds) (2004) Disability/postmodernity: Embodying disability

47. theory, London; New York: Continuum.

48. Davidson J. (2007) ‘In a world of her own …’: Re-presenting alienation and emotion

49. in the lives and writings of women with autism. Gender, Place and Culture, 14: 659–677.

50. Davidson J. (2008) Autistic culture online: Virtual communication and cultural

51. expression on the spectrum. Social & Cultural Geography, 9 (7): 791–806.

52. Davis L.J. (1995) Enforcing normalcy: Disability, deafness and the body, London: Verso.

53. Davis L.J. (2002) Bending over backwards: Disability, dismodernism, and other difficult

54. positions, New York: New York UP.

55. Dawson M. (2004) The misbehavior of behaviorists: Ethical challenges to the autism-ABA

56. industry. (https://www.sentex.ca/~nexus23/naa_aba.html)

57. Dekker M. (2006) On our own terms: Emerging autistic culture. (http://www.autscape.

58. org/2015/programme/handouts/Autistic-Culture-07-Oct-1999.pdf)

59. Dumit J. (2003) Is it me or my brain? Depression and neuroscientific facts. Journal of

60. Medical Humanities, 24: 35–48.

61. Dumit J. (2004) Picturing personhood: Brain scans and biomedical identity, Princeton, NJ:

62. Princeton UP.

63. Ehrenberg A. (2004) Le Sujet cerebral. Esprit, 309: 130–155.

64. Feinberg E., Vacca J. (2000) The drama and trauma of creating policies on autism:

65. Critical issues to consider in the new millennium. Focus on Autism and other

66. Developmental Disabilities, 15 (3): 130–137.

67. Fombonne E. (2003) Modern views on autism. Canadian Journal of Psychiatry, 48 (8):

68. –506.

69. Foucault M. (1988) Technologies of the self. L.H. Martin, H. Gutman, P.H. Hutton (еds)

70. Technologies of the self, Amherst: University of Massachusetts Press: 16–49.

71. Freeman B.J., Cronin, P. (2002) Diagnosing autism spectrum disorder in young

72. children: An update. Infants and Young Children, 14 (3): 1–10.

73. Gibbon S., Novas C. (2008) Introduction: Biosocialities, genetics and the social

74. sciences. S. Gibbon, C. Novas (еds) Biosocialities, Genetics and the Social Sciences,

75. London: Routledge: 1–18.

76. Goggin G., Newell C. (2003) Digital disability: The social construction of disability in new

77. media, Lanham, MD: Rowman & Littlefield.

78. Goggin G., Noonan T. (2006) Blogging disability: The interface between new cultural

79. movements and internet technology. A. Bruns, J. Jacobs (еds) Uses of blogs, New York:

80. Peter Lang: 161–172.

81. Grandin T. (1995) Thinking in pictures: And other reports from my life with autism, New

82. York: Vintage Books.

83. Hacking I. (1995) The looping effects of human kinds. D. Sperber, D. Premack,

84. A. James-Premack (еds) Causal cognition: A multidisciplinary approach, Oxford:

85. Clarendon Press: 351–383.

86. Hacking I. (2002) Making up people. Historical Ontology, Cambridge, MA: Harvard

87. UP: 99–114.

88. Hacking I. (2006) What is Tom saying to Maureen? London Review of Books, 28 (9)

89. (http://www.lrb.co.uk/v28/n09/hack01_.html)

90. Hacking I. (2009) Autistic autobiography. Philosophical Transactions of the Royal Society,

91. B, 364: 1467–1473.

92. Harmon A. (2004a) Adults and autism: An answer, but not a cure, for a social disorder.

93. New York Times, 29 April.

94. Harmon A. (2004b) Neurodiversity forever: The disability movement turns to brains.

95. New York Times, 9 May.

96. Harmon A. (2004c) How about not ‘curing’ us, some autistics are pleading. New York

97. Times, 20 December.

98. Jones R., Meldal T.O. (2001) Social relationships and Asperger’s syndrome:

99. A qualitative analysis of first-hand accounts. Journal of Intellectual Disabilities, 5:

100. –41.

101. Jones R.S.P., Zahl A., Huws J.C., (2001) First-hand accounts of emotional experiences

102. in autism: A qualitative analysis. Disability & Society, 16: 393–401.

103. Jurecic A. (2007) Neurodiversity. College English, 69: 421–442.

104. Kenway I.M. (2009) Blessing or curse? Autism and the rise of the internet. Journal of

105. Religion, Disability & Health, 13: 94–103.

106. Kirmayer L.J. (1988) Mind and body as metaphors: Hidden values in biomedicine.

107. M. Lock, D.R. Gordon (еds) Biomedicine examined, Dordrecht: Kluwer Academic

108. Publishers: 57–93.

109. Lage A. (2006) Autistas usam reme´dios para controlar aspectos da doen¸ca. Folha

110. OnLine, 27 July (http://www1.folha.uol.com.br/folha/equilibrio/noticias/ult263u4160.

111. shtml)

112. Luhrmann T.M. (2000) Of two minds: The growing disorder in American psychiatry, New

113. York: Alfred A. Knopf.

114. Martin E. (2000) Mind–body problems. American Ethnologist, 27: 569–590.

115. Martin E. (2007) Bipolar expeditions: Mania and depression in American culture, Princeton,

116. NJ: Princeton UP.

117. Martin E. (2009) Identity, identification, and the brain. Presented at the workshop

118. ‘Neurocultures’, Max Planck Institute of the History of Science, Berlin, 20–22 February.

119. Merzenich M.M., Jenkins W.M. (1994) Cortical representations of learned behaviors.

120. P. Andersen, O. Hvalby, O. Paulsen, B. Hokfelt (еds) Memory concepts, New York:

121. Elsevier: 437–454.

122. Metzinger T. (2009) The ego tunnel: The science of the mind and the myth of the self, New

123. York: Perseus Book Group.

124. Meyerding J. (1998) Thoughts on finding myself differently brained (https://www.autreat.

125. com/jane.html)

126. Meyerding J. (2003) The great ‘why label?’ debate. (http://www.planetautism.com/jane/

127. label.html)

128. Miller D., Slater D. (2000) The internet: An ethnographic approach, Oxford: Berg.

129. Nadesan M.H. (2005) Constructing autism: Unravelling the ‘truth’ and understanding the

130. social, London; New York: Routledge.

131. Nelson A. (2004) Declaration from the autism community that they are a minority group.

132. (http://www.prweb.com/releases/2004/11/prweb179444.htm)

133. Newschaffer C.J., Curran L.K. (2003) Autism: An emerging public health problem.

134. Public Health Reports, 118 (5): 393–399.

135. Ortega F. (2011) Toward a genealogy of neuroascesis. F. Ortega, F. Vidal. Neurocultures.

136. Glimpses into an Expanding Universe, Frankfurt; New York: Peter Lang.

137. Ortega F., Vidal F. (2007) Mapping the cerebral subject in contemporary culture.

138. RECIIS — Electronic Journal of Communication Information & Innovation in Health, 2:

139. –259.

140. Osteen M. (еd.) (2008) Autism and representation, New York: Routledge.

141. Padden C., Humphries T. (2006) Inside deaf culture. Cambridge, MA: Harvard UP.

142. Rabinow P. (1992) Artificiality and enlightenment: From sociobiology to biosociality.

143. J. Crary, S. Kwinter (еds) Incorporations, New York: Zone Books: 234–252.

144. Rees D., Rose S. (еds) (2004) The new brain sciences: Perils and prospects, Cambridge:

145. Cambridge UP.

146. Rodriguez P. (2006) Talking brains: A cognitive semantic analysis of an emerging folk

147. neuropsychology. Public Understanding of Science, 15: 301–330.

148. Rose N. (2007) The politics of life itself: Biomedicine, power, and subjectivity in the twentyfirst century, Princeton, NJ: Princeton UP.

149. Rosenberg C.E. (2006) Contested boundaries: Psychiatry, disease, and diagnosis.

150. Perspectives in Biology and Medicine, 49: 407–424.

151. Rubin S. (2005) Acceptance versus cure. (http://www.cnn.com/CNN/Programs/presents/

152. shows/autism.world/notebooks/sue/notebook.html)

153. Shapiro J. (1993) No pity: People with disabilities forging a new civil rights movement, New

154. York: Random House.

155. Shapiro J. (2006) Autism movement seeks acceptance, not cures. (https://www.npr.org/

156. templates/story/story.php?storyId=5488463)

157. Silberman S. (2001) The Geek syndrome. Wired, 9 (12). (http://www.wired.com/wired/

158. archive/9.12/aspergers.html)

159. Silverman C. (2008a) Brains, pedigrees and promises: Lessons from the politics of

160. autism genetics. S. Gibbon, C. Novas (еds) Biosocialities, genetics and the social sciences:

161. Making biologies and identities, London: Routledge: 38–55.

162. Silverman C. (2008b) Fieldwork on another planet: Social science perspectives on the

163. autism spectrum. BioSocieties, 3: 325–341.

164. Sinclair J. (1993) Don’t mourn for us. Voice, 1 (3).

165. Sinclair J. (1999) Why I dislike ‘person first’ language. (https://pdfs.semanticscholar.

166. org/80b8/5d920fd0fa6c259677e2004030de6fcc04b8.pdf)

167. Sinclair J. (2005) Autism network international: The development of a community

168. and its culture. (https://www.autreat.com/History_of_ANI.html)

169. Singer J. (1999) Why can’t you be normal for once in your life? From a ‘problem with

170. no name’ to the emergence of a new category of difference. M. Corker, S. French (еds)

171. Disability discourse, Buckingham: Open UP: 59–67.

172. Singer J. (2007) Light and dark: Correcting the balance. (http://web.archive.org/

173. web/20070310121441/http://www.neurodiversity.com.au)

174. Solomon A. (2008) The Autism Rights Movement. New York Magazine, 25 May. (http://

175. nymag.com/news/features/47225)

176. Swain J., Cameron C. (1999) Unless otherwise stated: Discourses of labeling and

177. identity in coming out. M. Corker, S. French (еds) Disability discourse, Buckingham:

178. Open UP: 68–78.

179. Valenstein E.S. (1998) Blaming the brain: The truth about drugs and mental health, New

180. York: The Free Press.

181. Valentine G., Skelton T., Butler R. (2003) Coming out and outcomes: Negotiating

182. lesbian and gay identities with, and in, the family. Environment and Planning D: Society

183. and Space, 21: 479–499.

184. Vidal F. (2009) Brainhood, anthropological figure of modernity. History of the Human

185. Sciences, 22: 5–36.

186. Vrecko S. (2006) Folk neurology and the remaking of identity. Molecular Interventions,

187. : 300–303.

188. Waltz M. (2005) Reading case studies of people with autistic spectrum disorders: A

189. cultural studies approach to issues of disability representation. Disability & Society,

190. : 421–435.

191. Weintraub K. (2005) A mother’s perspective. (http://web.archive.org/web/20051216174906/

192. http://asatonline.org/resources/library/moms_perspective.html)

193. Wickelgren I. (2005) Autistic brains out of synch? Science, 308: 1856–1858.

194. Wilson S., Peterson L. (2002) The anthropology of online communities. Annual Review

195. of Anthropology, 31: 449–467.

196. Wing L. (1997) The history of ideas on autism: Legends, myths and reality. Autism,

197. : 13–23.


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Ortega F. Neurological Identities and the Movement of Neurodiversity. Sociology of Power. 2020;32(2):125-156. https://doi.org/10.22394/2074-0492-2020-2-125-156. EDN: UMDVKU

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