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<article article-type="research-article" dtd-version="1.3" xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xml:lang="ru"><front><journal-meta><journal-id journal-id-type="publisher-id">socofpower</journal-id><journal-title-group><journal-title xml:lang="ru">Социология власти</journal-title><trans-title-group xml:lang="en"><trans-title>Sociology of Power</trans-title></trans-title-group></journal-title-group><issn pub-type="ppub">2074-0492</issn><issn pub-type="epub">2413-144X</issn><publisher><publisher-name>The Russian Presidential Academy of National Economy and Public Administration</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="doi">10.22394/2074-0492-2021-4-55-74</article-id><article-id custom-type="elpub" pub-id-type="custom">socofpower-194</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research Article</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="ru"><subject>СТАТЬИ</subject></subj-group><subj-group subj-group-type="section-heading" xml:lang="en"><subject>ARTICLES</subject></subj-group></article-categories><title-group><article-title>Умереть в России: институциональная антропология хосписного ухода</article-title><trans-title-group xml:lang="en"><trans-title>Dying in Russia: The Institutional Anthropology of Hospice Care</trans-title></trans-title-group></title-group><contrib-group><contrib contrib-type="author" corresp="yes"><contrib-id contrib-id-type="orcid">https://orcid.org/0000-0002-6400-7100</contrib-id><name-alternatives><name name-style="eastern" xml:lang="ru"><surname>Мохов</surname><given-names>Сергей В.</given-names></name><name name-style="western" xml:lang="en"><surname>Mokhov</surname><given-names>Sergei V.</given-names></name></name-alternatives><bio xml:lang="ru"><p>кандидат социологических наук</p></bio><bio xml:lang="en"><p>PhD in Sociology</p></bio><email xlink:type="simple">svmohov.hse@gmail.com</email><xref ref-type="aff" rid="aff-1"/></contrib></contrib-group><aff-alternatives id="aff-1"><aff xml:lang="ru">Институт этнологии и антропологии имени Н.Н. Миклухо-Маклая РАН; Ливерпульский университет имени Джона Мурса<country>Россия</country></aff><aff xml:lang="en">IEA RAS; Liverpool John Moores University<country>Russian Federation</country></aff></aff-alternatives><pub-date pub-type="collection"><year>2021</year></pub-date><pub-date pub-type="epub"><day>24</day><month>07</month><year>2025</year></pub-date><volume>33</volume><issue>4</issue><fpage>55</fpage><lpage>74</lpage><permissions><copyright-statement>Copyright &amp;#x00A9; Мохов С.В., 2025</copyright-statement><copyright-year>2025</copyright-year><copyright-holder xml:lang="ru">Мохов С.В.</copyright-holder><copyright-holder xml:lang="en">Mokhov S.V.</copyright-holder><license license-type="creative-commons-attribution" xlink:href="https://creativecommons.org/licenses/by/4.0/" xlink:type="simple"><license-p>This work is licensed under a Creative Commons Attribution 4.0 License.</license-p></license></permissions><self-uri xlink:href="https://socofpower.ranepa.ru/jour/article/view/194">https://socofpower.ranepa.ru/jour/article/view/194</self-uri><abstract><p>В большинстве стран развитие хосписов происходит в рамках двойного импорта. Сначала они возникают как единичные частные инициативы, опирающиеся на стандарты успешных зарубежных учреждений, а затем как попытка масштабирования кейсов внутри национальной системы здравоохранения. Как показывает мировая практика, результат этого процесса непредсказуем. При построении хосписной сети ее структурные элементы деформируются и видоизменяются, что приводит в конечном счете к падению качества ухода. Однако, избегая нормативного взгляда на этот процесс, стоит признать, что масштабирование приводит не только к искажению уходовых практик, но и к изменению самой институциональной среды, в которую инкорпорируются хосписы. Практики ухода в таком случае выступают инструментом, выявляющим эти деформации. В статье предпринимается попытка описания и интерпретации взаимных искажений на основе этнографического исследования работы государственных хосписных отделений в современной России. Как показывают примеры, в результате встраивания в больничную инфраструктуру хосписы не выполняют отведенную для них функцию: обеспечить достойный уход умирающего. Вместо этого хоспис оказался адаптирован под уже имеющиеся протоколы и привычное их прочтение и приобрел неожиданные функции: он закрывает ресурсные потребности больницы; позволяет получать финансирование, используя коечный фонд. Сама идея ухода за умирающими в современной России оказывается сильно редуцирована и имитирует привычные терапевтические практики лечения, что иллюстрируется протоколами нахождения пациентов в хосписе.</p></abstract><trans-abstract xml:lang="en"><p>In most countries, the development of hospices occurs as a double import: first, as single initiatives based on the high standards of successful world hospices, and then as an attempt to scale these cases into the national healthcare system. As world practice shows, the result of this process is unpredictable: with the development of the hospice network, some structural elements are deformed, which leads to a decrease in the quality of care. However, avoiding a normative view of this process, it is worth recognizing that the upscaling leads not only to a deformation of care practices, but also to a change in the institutional environment into 56 which hospices are incorporated. In such a case, care practices become a source of analysis of these deformations, capable of showing structural factors. I describe and interpret mutual distortions using ethnographic data conducted in state hospice departments in contemporary Russia. As a result of the integration of the hospice into the hospital infrastructure, the provision of care for the dying is not being implemented. Instead, hospices were adapted to the existing protocols and their usual interpretation. Hospices have acquired unexpected functions: they cover the resource needs of the hospital and make it possible to receive funding using the bed fund. The idea of caring for the dying in contemporary Russia is reduced and now imitates the usual therapeutic practices of treatment, which is illustrated by the protocols of patients staying in hospices.</p></trans-abstract><kwd-group xml:lang="ru"><kwd>хосписный уход</kwd><kwd>паллиативная помощь</kwd><kwd>хосписное движение</kwd><kwd>уход за умирающими</kwd><kwd>институциональный импорт</kwd></kwd-group><kwd-group xml:lang="en"><kwd>hospice care</kwd><kwd>palliative care</kwd><kwd>hospice movement</kwd><kwd>care of the dying</kwd><kwd>institutional imports</kwd></kwd-group></article-meta></front><back><ref-list><title>References</title><ref id="cit1"><label>1</label><citation-alternatives><mixed-citation xml:lang="ru">Здравомыслова Е. А., Темкина А. А. (2011) Доверительное сотрудничество во взаимодействии врача и пациентки: взгляд акушера-гинеколога. Е. Здравомыслова, А. Темкина (ред.) Здоровье и интимная жизнь: социологические подходы,СПб: Изд-во ЕУСПб: 23-53. EDN: XNNJTV</mixed-citation><mixed-citation xml:lang="en">Zdravomyslova E.A., Temkina A.A. (2011) Trustworthy cooperation in the interaction of a doctor and a patient: the view of an obstetrician-gynecologist. E. Zdravomyslova, A. Temkina (eds) Health and intimate life: sociological approaches, Saint-Petersburg: EUSP Publishing House: 23-53. - in Russ.</mixed-citation></citation-alternatives></ref><ref id="cit2"><label>2</label><citation-alternatives><mixed-citation xml:lang="ru">Clark D., Wright M., Bath P., Gatrell A. (2003) The international observatory on end of life care: a new research and development initiative in end of life care. Prog Palliative Care, 11 (3):137-144.</mixed-citation><mixed-citation xml:lang="en">Clark D., Wright M., Bath P., Gatrell A. (2003) The international observatory on end of life care: a new research and development initiative in end of life care. Prog Palliative Care, 11 (3):137-144.</mixed-citation></citation-alternatives></ref><ref id="cit3"><label>3</label><citation-alternatives><mixed-citation xml:lang="ru">Chatterji R. (2016) The Experience of Death in a Dutch Nursing Home: On Touching the Other. Veena Das, Clara Han ds) Living and Dying in the Contemporary World. A Compendium, Oakland: University of California Press: 696-711.</mixed-citation><mixed-citation xml:lang="en">Chatterji R. (2016) The Experience of Death in a Dutch Nursing Home: On Touching the Other. Veena Das, Clara Han ds) Living and Dying in the Contemporary World. A Compendium, Oakland: University of California Press: 696-711.</mixed-citation></citation-alternatives></ref><ref id="cit4"><label>4</label><citation-alternatives><mixed-citation xml:lang="ru">Curtis M. (2008) A Sociological Critique of 'Grand Narratives' in the History of Hospice and Palliative Care. University of Plymouth Research Theses.</mixed-citation><mixed-citation xml:lang="en">Curtis M. (2008) A Sociological Critique of 'Grand Narratives' in the History of Hospice and Palliative Care. University of Plymouth Research Theses.</mixed-citation></citation-alternatives></ref><ref id="cit5"><label>5</label><citation-alternatives><mixed-citation xml:lang="ru">Doka K. (2003) The death awareness movement: Description, history and analysis.C. Bryantd.). Handbook of death and dying. Sage: 50-56.</mixed-citation><mixed-citation xml:lang="en">Doka K. (2003) The death awareness movement: Description, history and analysis.C. Bryantd.). Handbook of death and dying. Sage: 50-56.</mixed-citation></citation-alternatives></ref><ref id="cit6"><label>6</label><citation-alternatives><mixed-citation xml:lang="ru">Driessen A., Borgstrom E., Cohn S. (2021) Placing death and dying: Making place at the end of life. Social Science &amp; Medicine.</mixed-citation><mixed-citation xml:lang="en">Driessen A., Borgstrom E., Cohn S. (2021) Placing death and dying: Making place at the end of life. Social Science &amp; Medicine.</mixed-citation></citation-alternatives></ref><ref id="cit7"><label>7</label><citation-alternatives><mixed-citation xml:lang="ru">Ellingsen S., Roxberg A., Kristoffersen K., Rosland J., Alvsvag H. (2013) Entering a World with No Future: A phenomenological study describing the embodied experience of time when living with severe incurable disease. Scandinavian Journal of Caring Sciences, 27 (1): 165-174.</mixed-citation><mixed-citation xml:lang="en">Ellingsen S., Roxberg A., Kristoffersen K., Rosland J., Alvsvag H. (2013) Entering a World with No Future: A phenomenological study describing the embodied experience of time when living with severe incurable disease. Scandinavian Journal of Caring Sciences, 27 (1): 165-174.</mixed-citation></citation-alternatives></ref><ref id="cit8"><label>8</label><citation-alternatives><mixed-citation xml:lang="ru">Glaser B., Strauss A. (1968) Time for Dying, Chicago: Aldine Publishing Company.</mixed-citation><mixed-citation xml:lang="en">Glaser B., Strauss A. (1968) Time for Dying, Chicago: Aldine Publishing Company.</mixed-citation></citation-alternatives></ref><ref id="cit9"><label>9</label><citation-alternatives><mixed-citation xml:lang="ru">Hart B., Sainsbury P., Short S. (1998) Whose dying? A sociological critique of the 'good death'. Mortality, 31 (1): 65-77.</mixed-citation><mixed-citation xml:lang="en">Hart B., Sainsbury P., Short S. (1998) Whose dying? A sociological critique of the 'good death'. Mortality, 31 (1): 65-77.</mixed-citation></citation-alternatives></ref><ref id="cit10"><label>10</label><citation-alternatives><mixed-citation xml:lang="ru">Kaufman S. R. (2000а) In the Shadow of 'Death with Dignity': Medicine and Cultural Quandaries of the Vegetative State. American Anthropologist, 102 (1): 69-83. EDN: GRKZXN</mixed-citation><mixed-citation xml:lang="en">Kaufman S. R. (2000а) In the Shadow of 'Death with Dignity': Medicine and Cultural Quandaries of the Vegetative State. American Anthropologist, 102 (1): 69-83.  EDN: GRKZXN</mixed-citation></citation-alternatives></ref><ref id="cit11"><label>11</label><citation-alternatives><mixed-citation xml:lang="ru">Kaufman S. R. (2000b) Senescence, Decline, and the Quest for a Good Death:Contemporary Dilemmas and Historical Antecedents. Aging Studies, 14 (1): 1-23.</mixed-citation><mixed-citation xml:lang="en">Kaufman S. R. (2000b) Senescence, Decline, and the Quest for a Good Death:Contemporary Dilemmas and Historical Antecedents. Aging Studies, 14 (1): 1-23.</mixed-citation></citation-alternatives></ref><ref id="cit12"><label>12</label><citation-alternatives><mixed-citation xml:lang="ru">Kaufman S. R. (2006) And a Time to Die: How American Hospitals Shape the End of Life, Chicago: University of Chicago Press.</mixed-citation><mixed-citation xml:lang="en">Kaufman S. R. (2006) And a Time to Die: How American Hospitals Shape the End of Life, Chicago: University of Chicago Press.</mixed-citation></citation-alternatives></ref><ref id="cit13"><label>13</label><citation-alternatives><mixed-citation xml:lang="ru">Kellehear A. (2014) The Inner Life of the Dying Person, New York: Columbia University Press.</mixed-citation><mixed-citation xml:lang="en">Kellehear A. (2014) The Inner Life of the Dying Person, New York: Columbia University Press.</mixed-citation></citation-alternatives></ref><ref id="cit14"><label>14</label><citation-alternatives><mixed-citation xml:lang="ru">Lynch T., Clark D., Centeno C. et al. (2009) Barriers to the development of palliative care in the countries of Central and Eastern Europe and the Commonwealth of Independent States. Journal Pain Symptom Manage, 37 (3): 305-315.</mixed-citation><mixed-citation xml:lang="en">Lynch T., Clark D., Centeno C. et al. (2009) Barriers to the development of palliative care in the countries of Central and Eastern Europe and the Commonwealth of Independent States. Journal Pain Symptom Manage, 37 (3): 305-315.</mixed-citation></citation-alternatives></ref><ref id="cit15"><label>15</label><citation-alternatives><mixed-citation xml:lang="ru">Malachowski C. K., Boydell K., Sawchuk P., Kirsh B. (2016) The work of workplace mental health: An institutional ethnography. Society and Mental Health, 6 (3): 207-222.</mixed-citation><mixed-citation xml:lang="en">Malachowski C. K., Boydell K., Sawchuk P., Kirsh B. (2016) The work of workplace mental health: An institutional ethnography. Society and Mental Health, 6 (3): 207-222.</mixed-citation></citation-alternatives></ref><ref id="cit16"><label>16</label><citation-alternatives><mixed-citation xml:lang="ru">McGibbon E., Peter E., Gallop R. (2010) An institutional ethnography of nurses' stress. Qualitative Health Research, 20 (10): 1353-1378.</mixed-citation><mixed-citation xml:lang="en">McGibbon E., Peter E., Gallop R. (2010) An institutional ethnography of nurses' stress. Qualitative Health Research, 20 (10): 1353-1378.</mixed-citation></citation-alternatives></ref><ref id="cit17"><label>17</label><citation-alternatives><mixed-citation xml:lang="ru">McGann S. (2013) The Production of Hospice Space: Conceptualising the Space of Caring and Dying, Farnham, UK: Ashgate Publishing.</mixed-citation><mixed-citation xml:lang="en">McGann S. (2013) The Production of Hospice Space: Conceptualising the Space of Caring and Dying, Farnham, UK: Ashgate Publishing.</mixed-citation></citation-alternatives></ref><ref id="cit18"><label>18</label><citation-alternatives><mixed-citation xml:lang="ru">Menzfeld M. (2018) Anthropology of Dying: A Participant Observation with Dying Persons in Germany, Wiesbaden: Springer.</mixed-citation><mixed-citation xml:lang="en">Menzfeld M. (2018) Anthropology of Dying: A Participant Observation with Dying Persons in Germany, Wiesbaden: Springer.</mixed-citation></citation-alternatives></ref><ref id="cit19"><label>19</label><citation-alternatives><mixed-citation xml:lang="ru">Parker-Oliver D. (2000) The Social Construction of the "Dying Role" and the Hospice Drama. OMEGA-Journal of Death and Dying, 40 (4): 493-512.</mixed-citation><mixed-citation xml:lang="en">Parker-Oliver D. (2000) The Social Construction of the "Dying Role" and the Hospice Drama. OMEGA-Journal of Death and Dying, 40 (4): 493-512.</mixed-citation></citation-alternatives></ref><ref id="cit20"><label>20</label><citation-alternatives><mixed-citation xml:lang="ru">Pasveer B. (2019) Deadlines: doing times in (Dutch) hospice. Mortality, 24 (3): 319-332. Rankin J., Campbell M. L. (2006) Managing to nurse: inside Canada's health care reform, Toronto: University of Toronto.</mixed-citation><mixed-citation xml:lang="en">Pasveer B. (2019) Deadlines: doing times in (Dutch) hospice. Mortality, 24 (3): 319-332. Rankin J., Campbell M. L. (2006) Managing to nurse: inside Canada's health care reform, Toronto: University of Toronto.</mixed-citation></citation-alternatives></ref><ref id="cit21"><label>21</label><citation-alternatives><mixed-citation xml:lang="ru">Rosenberg J. (2011) Whose business is dying? Death, the home and palliative care. Cultural Studies Review, 17 (1): 15. DOI: 10.5130/csr.v17i1.1971</mixed-citation><mixed-citation xml:lang="en">Rosenberg J. (2011) Whose business is dying? Death, the home and palliative care. Cultural Studies Review, 17 (1): 15.  DOI: 10.5130/csr.v17i1.1971</mixed-citation></citation-alternatives></ref><ref id="cit22"><label>22</label><citation-alternatives><mixed-citation xml:lang="ru">Sarmento V. P., Gysels M., Higginson I. J., Gomes B. (2017) Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers. BMJ Supportive &amp; Palliative Care. Dec., 7 (4).</mixed-citation><mixed-citation xml:lang="en">Sarmento V. P., Gysels M., Higginson I. J., Gomes B. (2017) Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers. BMJ Supportive &amp; Palliative Care. Dec., 7 (4).</mixed-citation></citation-alternatives></ref><ref id="cit23"><label>23</label><citation-alternatives><mixed-citation xml:lang="ru">Seymour J. E. (2001) Critical Moments: Death and Dying in Intensive Care, Buckingham: Open University Press.</mixed-citation><mixed-citation xml:lang="en">Seymour J. E. (2001) Critical Moments: Death and Dying in Intensive Care, Buckingham: Open University Press.</mixed-citation></citation-alternatives></ref><ref id="cit24"><label>24</label><citation-alternatives><mixed-citation xml:lang="ru">Singer M., Baer H. (2011) Introducing Medical Anthropology. A Discipline in Action, Lanham: Altamira.</mixed-citation><mixed-citation xml:lang="en">Singer M., Baer H. (2011) Introducing Medical Anthropology. A Discipline in Action, Lanham: Altamira.</mixed-citation></citation-alternatives></ref><ref id="cit25"><label>25</label><citation-alternatives><mixed-citation xml:lang="ru">Simone A. (2021) Ritornello: "People as Infrastructure". Urban Geography. DOI: 10.1080/02723638.2021.1894397 EDN: SVYEUY</mixed-citation><mixed-citation xml:lang="en">Simone A. (2021) Ritornello: "People as Infrastructure". Urban Geography.  DOI: 10.1080/02723638.2021.1894397  EDN: SVYEUY</mixed-citation></citation-alternatives></ref><ref id="cit26"><label>26</label><citation-alternatives><mixed-citation xml:lang="ru">Siebold C. (1992) The hospice movement: Easing death's pains, Twayne.</mixed-citation><mixed-citation xml:lang="en">Siebold C. (1992) The hospice movement: Easing death's pains, Twayne.</mixed-citation></citation-alternatives></ref><ref id="cit27"><label>27</label><citation-alternatives><mixed-citation xml:lang="ru">Simone, A. (2004) People as Infrastructure: Intersecting Fragments in Johannesburg. Public Culture, 16 (3): 407-429.</mixed-citation><mixed-citation xml:lang="en">Simone, A. (2004) People as Infrastructure: Intersecting Fragments in Johannesburg. Public Culture, 16 (3): 407-429.</mixed-citation></citation-alternatives></ref><ref id="cit28"><label>28</label><citation-alternatives><mixed-citation xml:lang="ru">Stage F. K., Manning K. ds) (2003) Research in the College Context: Approaches and Methods, Routledge.</mixed-citation><mixed-citation xml:lang="en">Stage F. K., Manning K. ds) (2003) Research in the College Context: Approaches and Methods, Routledge.</mixed-citation></citation-alternatives></ref><ref id="cit29"><label>29</label><citation-alternatives><mixed-citation xml:lang="ru">Stonington S. D. (2012) On Ethical Locations: The Good Death in Thailand, Where Ethics Sit In Places. Social Science &amp; Medicine, 75 (5): 836-844.</mixed-citation><mixed-citation xml:lang="en">Stonington S. D. (2012) On Ethical Locations: The Good Death in Thailand, Where Ethics Sit In Places. Social Science &amp; Medicine, 75 (5): 836-844.</mixed-citation></citation-alternatives></ref><ref id="cit30"><label>30</label><citation-alternatives><mixed-citation xml:lang="ru">Stolberg M. (2017) A history of palliative care, 1500-1970. Concepts, practices, and ethical challenges. Springer.</mixed-citation><mixed-citation xml:lang="en">Stolberg M. (2017) A history of palliative care, 1500-1970. Concepts, practices, and ethical challenges. Springer.</mixed-citation></citation-alternatives></ref><ref id="cit31"><label>31</label><citation-alternatives><mixed-citation xml:lang="ru">Suzuki H. (2013) Introduction: Making One's Death, Dying, and Disposal in Contemporary Japan. Hikaru Suzuki d.) Death and Dying in Contemporary Japan, Hoboken: Taylor and Francis: 1-30.</mixed-citation><mixed-citation xml:lang="en">Suzuki H. (2013) Introduction: Making One's Death, Dying, and Disposal in Contemporary Japan. Hikaru Suzuki d.) Death and Dying in Contemporary Japan, Hoboken: Taylor and Francis: 1-30.</mixed-citation></citation-alternatives></ref><ref id="cit32"><label>32</label><citation-alternatives><mixed-citation xml:lang="ru">Townsend E., Langille L., Ripely D. (2003) Professional tension in client-centred practice: Using institutional ethnography to generate understanding and transformation. The American Journal of Occupational Therapy, 57 (1): 17-28.</mixed-citation><mixed-citation xml:lang="en">Townsend E., Langille L., Ripely D. (2003) Professional tension in client-centred practice: Using institutional ethnography to generate understanding and transformation. The American Journal of Occupational Therapy, 57 (1): 17-28.</mixed-citation></citation-alternatives></ref><ref id="cit33"><label>33</label><citation-alternatives><mixed-citation xml:lang="ru">Zerubavel E. (1982) The Standardization of Time: A Sociohistorical Perspective. American Journal of Sociology, 88 (1): 1-23.</mixed-citation><mixed-citation xml:lang="en">Zerubavel E. (1982) The Standardization of Time: A Sociohistorical Perspective. American Journal of Sociology, 88 (1): 1-23.</mixed-citation></citation-alternatives></ref></ref-list><fn-group><fn fn-type="conflict"><p>The authors declare that there are no conflicts of interest present.</p></fn></fn-group></back></article>
